But Nancy has.
Nancy who has Becca. The Miracle Baby.
Nancy who has a husband with a full-time job.
Nancy and John who - between them - have 4 degrees.
I know you won't all agree with her. But please just hear her all the way out. Please imagine yourself in her shoes.
And whatever you decide, please do it in prayer. Please let the Spirit of God guide you in your decisions and in your words.
Here is what Nancy wrote today.
I’m hesitant to write this piece. I will undoubtedly offend some of my beloved readers. I know that some of you will disagree with some or all of what I have to say. And I know that my daughter’s story shouldn’t be exploited for political gain or manipulation. At the same time, though, I know that because of the road we have trod these past 18 months, I have learned a little bit about our medical and insurance systems. And so, in light of these experiences and my deep theological conviction that all of God’s children are loved equally, I want to share with you the conclusions that I have drawn regarding healthcare reform. Feel free to ignore what I have to say, but please be nice with any comments you may have.
Deep breath. Here goes…
In 14.5 months of life, Becca has accumulated healthcare bills totalling about $831,000. That’s a lot of moolah.
Flashback to 18 months ago, when we were preparing to move and change jobs. Remember how I was all stressed out trying to make sense of insurance coverage, networks, alternative plans, etc? Obviously, it’s a good thing I worked all of that out, because our out of pocket expenses for Becca’s care total $2000. Out of $831,000. (We had to pay more for my care, but that’s kind of a long story – but only a few thousand dollars out of pocket for me, too.) Even with our astronomical insurance premiums ($1760 a month for the 3 of us), we made – as Howie would say – “a very good deal.” But we were very lucky. Very, very lucky.
When we first discussed the fact that we would be moving mid-pregnancy with our O.B., she assured us that “insurance can’t deny you because you are pregnant.” So when I saw how much the premiums for the clergy group health insurance policy would run, I sought out other options. (As an elder serving full-time, John has to participate in the group plan. As an elder serving part-time (at the time), I had the option to shop around.) I quickly learned that I did not qualify for any other plan. Nobody (Blue Cross Blue Shield, Humana, Aetna, etc.) would even look at an application from me because I was pregnant. And this was before I even had a chance to tell them about all the risks associated with my pregnancy.
Thankfully, though, since I qualified for the clergy group policy through John’s appointment, I was able to maintain coverage. (This is what Dr. Walsh meant with her comment – that a group for which you already qualify cannot exclude you on the basis of your pregnancy. That was good news, at least.) Now, because of the way the pregnancy unfolded, I’m pretty sure that none of those companies would have anything to do with me – even though I’m notpregnant…which means, of course, that without employer-provided health insurance, I am uninsurable.
Becca, on the other hand, was born uninsurable. Those of you who have had children in, oh, the last 40 years probably remember all of those mailers that you get about the Gerber Grow-Up plan – the life insurance policy that turns into a savings bond when the child turns 21 or something like that. It reads like every child qualifies. But not Becca. I didn’t even waste the time on a phone call. Private insurance companies wouldn’t go near her with a ten-foot pole, no matter how cute she is. Simply by telling an adjuster her birth weight, I can get a good laugh.
Again, though, as John’s dependent, she qualifies for the group plan, so she’s covered. She actually gets double coverage right now, though, because since she is technically disabled (based on birth weight, health conditions, and developmental delays according to her actual birthday), she qualifies for TennCare, Tennessee’s version of Medicaid. (This is why we have paid less for her care than mine. As secondary insurance, TennCare picks up the co-pays, deductibles, etc. that our private insurance does not. But they don’t cover helmets either, FYI.) We LOVE TennCare. It kept us from having to pay a second deductible on her when we switched insurance when she was 9 days old (a technicality of appointment changes in the UMC), and when the new calendar year rolled around. It has covered the $15 co-pay we have for every doctor’s appointment – and when you see a pediatrician and 7 specialists, those $15’s add up. (Remember how often we were going to the doctor at first?) It has kept her prescription costs low (read: $0). However, as I have mentioned before, there is a chance that she may lose her TennCare, due to the unknown ramifications of a recently-settled court case.
Losing TennCare would be unfortunate, but she’d still have our primary coverage. Except that….our primary insurance has a lifetime cap of $2,000,000. If we anticipate Becca’s being on our plan until she’s 25 (assuming she’s in school, so on and so forth) and remember that she’s already $831,000 along, it’s not hard to imagine a scenario in which she hits that cap. What if her issues that we are just monitoring now become bigger deals? What if she needs more surgery? What if she gets in an accident? What if she gets cancer? What if….I need to stop thinking about these scenarios…but you get the idea. It wouldn’t be hard to do. And that’s a LIFETIME cap. So what if, heaven forbid, she decides to become a United Methodist minister in Tennessee? Oops. No insurance for you! (Okay, that’s a long way down the road, but still, she’s a year old, and already the deck is stacked against her. Not fair.)
Again, we are good for now, especially since now that John is fully ordained, he is guaranteed an appointment (and thus, insurance). But what would happen if (I can’t even type this without tearing up) something happened to sweet John Hill? Or, in a more mundane story, what if he decided that he wanted to change careers? Or go back to school? Or strike out on his own, as an entreprenuer of some sort? Becca and I would be S.O.L. So we really are John’s dependents in the strictest sense of the world. I hate that we are a burden to him in that sense – not that he thinks of us as a burden or minds it – but I wish that we were able to free him up to follow as God may lead. (We’re still planning on following as God leads; we’re just trusting that God will lead us in directions that involve health insurance at this point. Perhaps when we were younger (those were the days…) we could have gone without…now it would just be squandering the gift that God has given us in Becca.)
It is terrifying to me to think about Becca and I going without insurance. It would compromise our access to care beyond emergency services. It would definitely mean no more babies for me, and one emergency room visit with a hospital admission could financially ruin us. If Becca starts wheezing this winter, I don’t want to have to think twice about going to the doctor to check for R.S.V., when I know that quick treatment is crucial to her survival. I don’t want to have the weigh the importance of prescriptions against the need for food. I don’t want to have to live every day wondering if Becca’s amazing strength will hold up. (Okay, I do that last one already, but I don’t want the threat of immient bankrupcy to be the soundtrack to those worries.)
And think about this – Becca and I are privileged people. I was born to parents who planned for our college funds before we were born (I think they planned, at least…somehow it worked out and I was expected to go to college). I had access to education, extracurriculars, healthcare, good role models…I’m not saying my childhood was perfect; I’m just saying that I had everything I needed to get ahead in life. And I think I made good on it. I’m not a shiftless lazy slouch who is whining that nobody is giving her free healthcare for doing nothing. At least, I don’t think I am. And sweet Becca, as we know, has had to fight from the very beginning. And she’s just a kid! How could she have done something wrong already?
Becca and I have not fallen through the cracks, and for that, I am deeply, deeply grateful – to God, to John, to all of you fabulous taxpayers, to our families. But it does feel like we spend a little time every day, standing on the edge and peering down into that crack. Because I know, all too well, that at any moment, life can change, and we could be sent plunging.
A system that allows people like me and Becca to live so precariously is not a just system. I’m not saying that Becca and I are special. (Okay, I am saying that she is special. But I’m not.) But John and I have been responsible people who have made responsible choices. I would just like to see those choices made available to everyone. It might mean that those of us with great access to excellent healthcare would see some changes. Perhaps we would have to wait longer to see non-emergent specialists. Perhaps our beloved doctors would have to bill a little bit less. But isn’t it just like the stewardship of all other resources? As in, don’t those who have a lot need to share with those who have little in order for everyone’s (both the giver and recipient’s) needs to be met? Isn’t it possible to think beyond ourselves, even in matters as personal as healthcare?
I am a “Reverend,” and I do have both a B.A. and Master’s in Religion, but I’m not in the business of guessing what Jesus would say or do about much of anything. Just a quick glance at the Gospel of John reveals a Savior as enigmatic as loving. But I do think that Jesus spoke pretty specifically on this matter in Luke 10. To the “expert in the law,” Jesus tells the parable of the Good Samaritan. You know that story, but let me refresh you. Jesus tells the expert that in order to fulfill the law, you must love your neighbor as yourself. In defining who one’s neighbor is, Jesus tells a story about a man robbed, beaten, and left for dead. Several people pass the man by, but the Samaritan acts as a true neighbor and provides care – healthcare – for the man. In verse 37, Jesus tells the expert – and us – to “go and do likewise.”
Friends, this is our chance to do likewise. This is ourchance to to show mercy to our neighbors, whatever their scenario may be. It’s not our place to judge if someone is worthy of care, whether or not they are down on their luck or have squandered their opportunities. Because life is not a level playing field. Look at Becca, for Pete’s sake. Please talk with your senators and representatives and encourage them to pass significant healthcare reform that guarantees access to healthcare for everyone – regardless of their pre-existing conditions, their previous health costs, or their employer’s prerogative to offer (or not to offer) insurance coverage. And please, in the process, show the same mercy and respect to those with whom you agree and those whose opinion couldn’t be farther from yours. Please, let’s learn to be good neighbors.
p.s. Just to head off anyone who might be ill-mannered enough to say this – in my reading of the prominent bills (not word for word, but pretty thorough for one who is no longer in the legislative business), I have found absolutely nothing that would have impacted the kind of care that Becca received. There are not weight limits, definitions of viability, limits on care except as deteremined by a patient and his or her doctor(s). I did find a greater emphasis on quality pre-natal care, which is proven to reduce the risk of premature birth. There are no “death panels,” no support for abortion, and no, as I read on a sign outside of the town hall meeting I tried to get into tonight, “Obama-care [does not equal] Granny’s going down!” And please, whatever side of the issue you are on, think about the words you choose before you put something on posterboard and wave it around for the cameras. Seriously.